Our Privacy Philosophy

At Private Access, Inc., our core belief is that individuals should have more control over who can see and use information about themselves. When it comes to confidential personal information, we think that people should have an easy way to maintain the privacy they desire, while granting access to those whom they choose.  We’re building a system to make this possible.

The founder of our company, Robert Shelton, serves as chairman of a national patient advocacy group for a rare genetic condition.  Through this work, we have found that many people have conflicting desires concerning privacy.  On the one hand, they want certain parts of their health information to be kept private.  And at the same time, they want the right people - for example, a trusted family member or friend, their personal doctors, and researchers who could use the information to possible accelerate medical breakthroughs - to have access to it. 

It was out of an appreciation for this tension - the intense and justifiable wish for both privacy and access - that Private Access, Inc., was born.  And as our country moves in the direction of a nationwide electronic medical records system and uses new technologies that make it easier than ever before for widespread sharing of information “at Internet speed”, the need is perhaps greater than ever for tools that empower individuals to decide who they wish to see their information. 

Private Access, Inc. offers users easy-to-use tools that enable each person to set clear and detailed privacy instructions, which we call “Privacy Preferences,” such as who can see your personal information, who can contact you, and for what purpose.

Privacy Statement Summary

Our Privacy Statement explains how Private Access, Inc. protects and handles the personal informa­tion of individual users.  The bottom line is that you, as an individual user, maintain control of the information you supply to us:

• You decide how much information you want to provide,
• You decide whether to allow others to search for and view your personal information, and
• You decide who can contact you, and for what purposes.

You can change any of these decisions at any time.  Private Access, Inc.'s patient-centric platform, also called PrivateAccess™ allows you to set Privacy Preferences that will exert more control over both the privacy of your information and who has access to it.  Based upon the Privacy Preferences you create at PrivateAccess™, our initial application makes it easier for you to find out about important research studies that may be of interest to you.  Additional privacy-enabled services that utilize one or more of the features of PrivateAccess™ are planned in the future to expand your control over the privacy of your information and who has access to it.

Please read our complete Privacy Statement for full information about our privacy practices. Throughout the Privacy Statement, the terms “Private Access, Inc.” and “Private Access” - with a space between the two words - refer to the company and are used interchangeably. “PrivateAccess™” - without a space between the two words - and “PrivateAccess.com™” refer to the company’s core, web-based privacy platform and service and are also used interchangeably.