What information will Private Access collect from you?
You
can open an account at PrivateAccess™ by providing basic information
about yourself, such as your name and email address.
In
order to protect you and your records, Private Access, Inc. may use
independent identity verification services to verify that you are
who you say you are. If you choose to make your personal
information available for third parties to view and/or contact you,
we will collect your contact information, such as email address and
phone number.
If
you contact Private Access for technical help, we may need to
collect and record information in order to assist you.
For
all website visitors, Private Access will collect standard web-based
data, such as IP (Internet Protocol) address, browser type,
referring pages, ISP (Internet Service Provider), and date/time
stamp. Private Access will not seek to identify users through such
data unless we believe a visitor is using the site for malicious
purposes.
How will Private Access use your information?
Private
Access, Inc. will use your information to fulfill the instructions you
give us, using the preferences you set on our website (“Privacy
Preferences”).
We
will use the information you provide, as well as information we may
obtain from independent identity verification services, to verify
your identity.
De-identified
Data: We may use De-Identified Data (see definition in Glossary)
internally and with selected third parties, such as patient advocacy
groups, business partners, public health authorities, or others, to
understand the effectiveness of our operations, improve medical
treatments in general, or help us improve our future services. Click
here
for
examples of how we may use De-Identified Data.
Examples of Uses of De-Identified Data:
- We might aggregate data about what types of patients are using our services in order to encourage other patient groups to participate. For instance, we might tell an Alzheimer’s support group the number of people with Parkinson’s disease who have already registered.
- We might disclose trends about what percentage of users who asked to be contacted about research opportunities actually were contacted by researchers.
- We might disclose statistics at a research conference about patients with genetic conditions who have used our services to find and enroll in research studies.
What choices do you have regarding your information?
Private
Access, Inc. gives you meaningful choices about controlling your
information – including whom you let see it, how, and when.
Your
choices include:
Whether
to open a PrivateAccess™ account,
How
much personal information to provide (see Glossary
for
definition of “personal information”), and
Whether
third parties, such as medical researchers, may contact you. For
example, you may be given a choice between (a) allowing a particular
third party to make direct contact with you immediately or (b)
waiting to decide whether to allow contact until you learn through
Private Access that the third party would like to contact you.
You
may change your Privacy Preferences at any time.
You
may close your account at any time.
What information will Private Access share with others?
o
We
recommend that you review the privacy policies of third parties
before deciding to share your information with them.
o
This
Privacy Statement applies only to how Private Access handles your
information; it does not apply to your information once it is
disclosed to others in accordance with your Privacy Preferences.
We
will share some information with certain third parties in the course
of running our business. We will only share such information:
With
companies that provide services to help us operate our business,
subject to strict contractual requirements for them to protect your
information;
When
required by law, including subpoenas and court orders; and
In
extraordinary circumstances, if Private Access, Inc. reasonably believes
the disclosure is needed to respond to an imminent physical threat
to you or others, to defend or assert legal rights, or in response
to an immediate health risk authenticated by a medical
professional.
De-Identified
Data (See Glossary
for
definition): We may share De-Identified Data internally and with
selected third parties, such as patient advocacy groups, business
partners, public health authorities, or others, to understand the
effectiveness of our operations, improve medical treatments in
general, and help us improve our future services. Click here
for
examples of how we may share De-Identified Data.
Examples of Sharing De-Identified Data:
- We might aggregate data about what types of patients are using our services in order to encourage other patient groups to participate. For instance, we might tell an Alzheimer’s support group the number of people with Parkinson’s disease who have already registered.
- We might disclose trends about what percentage of users who wanted to be contacted about research opportunities actually were contacted by researchers.
- We might disclose statistics at a research conference about patients with genetic conditions who have used our services to find and enroll in research studies.
We
will disclose your information only as described here.
Will Private Access use your information for marketing?
There
may be times when you choose to share your personal information held
by Private Access, Inc., to learn more about useful products or services.
However, unless you clearly, conspicuously, and specifically consent,
Private Access will not:
Private
Access, Inc. may post information on its website about products and
services and give you the opportunity to request more information.
How does Private Access protect the security of your information?
Private
Access, Inc. is committed to protecting the security, integrity, and
privacy of your information. We use appropriate technologies and
controls that help prevent your information from inappropriate
viewing, use, loss, or disclosure. For example, we impose controls
that limit internal access to your information, and we maintain an
audit log that tracks who has accessed your information. If we share
your information with companies that help us operate our business, we
impose strict contractual requirements on them to protect your
information. When we collect or transmit your personal information
via the website, we use SSL (Secure Sockets Layer) encryption. We
also use independent information security experts to assess our
security controls.
There
is always some risk that unauthorized, wrongful, or illegal access to
your information could occur or that transmissions over the Internet
could be intercepted. If, despite our precautions, we ever experience
a breach of the security of your information, we will notify you in
accordance with federal and state laws.
Because
of the sensitivity of the information that our users submit on the
PrivateAccess™ website, we urge you to take similar precautions to
protect the security of your user name and password that you use for
other user names and passwords that grant access to sensitive
information, such as on-line access to a bank account.
How does Private Access verify that people requesting access to your information are who they say they are?
To
enhance security, Private Access, Inc. may use independent identity
verification services to attempt to verify that anyone seeking to
establish an account on our system is who they say they are.
Once
an account has been created, logging in to our system requires
multi-factor authentication (such as a User ID, a password and
challenge questions) similar to many online banking sites.
How can you access your own information?
You
can view the information you have submitted into your active PrivateAccess™
account on the website. In addition, if you ever submit
information to us in another way, such as by telephone, we will make
commercially reasonable efforts to make that information available to
you.
Can children use the Private Access websites?
No.
Children under the age of 18 are not permitted to establish or access
PrivateAccess.com accounts. Parents or guardians can, however, create
custodial accounts for their children under the age of 18.
Do the Private Access websites use cookies or similar technologies?
Yes.
Private Access may use cookies, web beacons, and similar technologies
to improve your user experience with the site, help us verify your
identity, measure the effectiveness of our services, and enhance our
products. (Cookies are small bits of data placed on your computer
that identify your browser to our server. Web beacons, also known as
clear gif tags, are electronic images, data, or code embedded in web
pages or emails to track and measure usage and activity.) We may use
web beacons in communications with users to keep an accurate audit
log that you will be able to view from PrivateAccess.com™ and, where
needed, to assure proper operation of the service (for example, to
determine if a message to you was delivered and opened).
What would happen to your information if Private Access sells its operations or goes out of business?
If
Private Access, Inc., were to transfer assets or operations in connection
with a merger, sale, bankruptcy, or other transaction, we might
transfer your information to the acquiring or merging entity. If we
were to do so, we would make good faith efforts to ensure that the
acquiring entity be contractually obliged to protect your information
as we do. We would also make good faith efforts to modify or notify
you in advance of the pending transaction to permit you to close your
account prior to the transaction if you chose to do so.
Will Private Access permanently destroy your information if you ask us to?
Yes,
subject to the following:
If
you delete health information from your account, the deleted health
information becomes immediately inaccessible by you and cannot be
viewed by anyone through our system. Similarly, if you close your
account, all of your health and contact information will become
immediately inaccessible to you and cannot be viewed by anyone
through our system. In both cases:
The
deleted information will be securely destroyed.
For
a limited amount of time, backup systems may still contain the
information, although in many cases, such information would be
difficult, perhaps impossible, to reconstruct.
Audit
logs and information needed for security and legal purposes and
other non-health information about your account will be retained for
a commercially reasonable period of time, and then securely
destroyed.
How will Private Access communicate with you?
Private
Access may periodically contact you regarding your account or to
notify you of changes to our website or services. These
communications will be made via e-mails that contain a link to our
secure website but will not
contain any sensitive information (click to see examples of e-mails we might send.)
If we later add options to have you authorize us to contact you by
phone, fax, text messages, or other means, we will follow similar
precautions to avoid sending or leaving messages containing sensitive
information. When you sign in to your PrivateAccess™ account, you
will have access to your messages, which may include messages from
researchers who wish to contact you, alerts that need your attention,
or updates from us about our services.
However,
unless you clearly, conspicuously, and specifically consent, we will
not
contact you, or allow others to contact you, to market products or
services to you.
Emails we send you will not reveal any sensitive information. For example:
Subject: Privacy Alert
A research opportunity merits your attention. If you are Jane Doe, you can visit PrivateAccess™ to view this request: https://www.privateaccess.com/Pages/ToolBox/ConcernList.aspx.
Does this Privacy Statement apply to business and professional users of the Private Access websites?
This
Privacy Statement primarily contains information about how we
collect, use and disclose information of individual users. Business
and professional users of Private Access’ services should
review the terms of any contractual requirements applicable to them.
How will Private Access let you know if it updates this Privacy Statement?
Any
updates to this Privacy Statement will be posted here. Most updates
are expected to be editorial in nature or reflect ongoing
improvements in our services. If, however, we make changes to the
Privacy Statement that would materially affect your protections or
choices, we will, at least seven (7) days in advance of such change
taking effect, send you an e-mail to your e-mail address in our
records about the change, in addition to posting the new Privacy
Statement on our website.
What is the effective date of this Privacy Statement?
This
Privacy Statement is effective June 25, 2009.
How can you contact Private Access with privacy questions or concerns?
If
you have any questions, concerns, or complaints about our privacy
protections, please write to us at LegalDept@PrivateAccess.com
, and we will attempt to resolve your concerns.
Glossary
As
used in this Privacy Statement:
“Personal
Information” is information you supply to Private Access, Inc. through its website. It
includes (a) identifiable contact information, such as name, address,
telephone, and email address, (b) information you provide about
yourself, such as your health information, and (c) “anonymized
information,” which is the same information as (b), but with
your identifiers and contact information removed and a random
alphanumeric code assigned to it for search purposes.
“De-Identified
Data” means information that does not identify individuals and
with respect to which there is no reasonable basis to believe that
the information can be used to identify individuals. In
de-identifying information, Private Access, Inc. follows the standard set
by a federal law called HIPAA (the Health Care Portability and
Accountability Act), even though Private Access is not subject to
that law. Click here
for
examples of how we may use and disclose De-Identified Data.
Examples of Sharing De-Identified Data:
- We might aggregate data about what types of patients are using our services in order to encourage other patient groups to participate. For instance, we might tell an Alzheimer’s support group the number of people with Parkinson’s disease who have already registered.
- We might disclose trends about what percentage of users who wanted to be contacted about research opportunities actually were contacted by researchers.
- We might disclose statistics at a research conference about patients with genetic conditions who have used our services to find and enroll in research studies.
Thank
you for reviewing our Privacy Statement.